10/10/2023 0 Comments Alula cancer![]() I just recently got diagnosed with radiation fibrosis in my chest and back, which is the stiffening of my muscles from my radiation, and I am seeing a cardiologist because one of the chemo drugs that I needed was cardiotoxic." "I'm currently struggling with medically induced menopause, at the tender age of 32. "I am continuously surprised how the after effects persist and are new," explained Shuster-Bier. There is always something new to be prepared for and understand. The truth is that the cancer journey is never really over. It includes personalized registries and 'cancer survival kits' that are categorized by the type of treatment a patient is going through. So Alula has built out a marketplace with products that have been recommended by patients, and guided by an advisory board of medical experts. Shuster-Bier explained that her oncologists and doctors prepared her for some of the after effects of her treatment, like losing her hair, but couldn't recommend a good place to purchase a wig, for example. That includes products they'll need to deal with the treatment process, communication tools to help coordinate support, and content to encourage and support patients on their journey. It's hard to understand who to trust."Īlula is a multi-pillared platform that, in the words of Shuster-Bier, takes a radically honest approach to preparing its users for everything they'll go through during their treatment. "It is not in a singular place, it is not organized in a radically honest way. ![]() "A lot of people are researching scattered parts of the internet for various elements of product recommendations, ways to communicate ways to raise money for your treatment, ways to understand how to tell people or to announce to your boss that you have treatment," said Shuster-Bier. Despite the sheer number of people affected by cancer and cancer treatment, there aren't many resources out there to help them understand what to expect.
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